Finding an HIV specialist: who should be on your medical team?

By: Ann K. Avery, MD, Infectious Disease Physician at MetroHealth Medical Center

If you're living with HIV, having the right health care team by your side is super important. One of the key members of this team is an HIV specialist. But what exactly do they do, and who else should be on your care team to ensure you're getting the best care possible? Let’s dive in and explore who can help you manage your health effectively.

What does an HIV specialist even do?🌟

An HIV specialist is a doctor who has experience and training in managing HIV. They have a “MD” or “DO” after their name. They stay up to date with the latest treatments and research, so that you receive the best possible care. Your HIV specialist will help you with medications, monitor your viral load, and manage any side effects. They’re your go-to person for any HIV-related questions or concerns. Many work at HIV clinics (check out this article for more information 😊).

Primary care physician 🩺

A primary care physician (PCP) looks after your overall health. They handle regular check-ups, vaccinations, and other routine health issues.

Sometimes, your PCP might also be an HIV specialist. Some HIV specialists are internal medicine or family medicine doctors, who also are PCPs. Other HIV specialists, like infectious disease (ID) physicians, might just focus on your HIV, while a family medicine or internal medicine PCP handles other issues. ID physicians also have lots of knowledge about treating opportunistic infections and other situations that might come up for people who haven’t yet reached U=U.

Basically, not all PCPs are also HIV specialists. And some, but not all, infectious disease physicians are also PCPs (we know, it’s confusing!) It's important for your PCP and HIV specialist to communicate and work together to provide you with comprehensive care.

Pharmacist 💊

Your pharmacist plays an important role in your medical team. They ensure you understand how to take your medications correctly. They help manage any potential drug interactions. Pharmacists also provide valuable advice on how to handle side effects and ensure you're getting the most out of your treatment.

Mental health professional 🌸

Living with HIV can be challenging, and it’s important to take care of your mental health as much as you’re taking care of your physical health. It all works together. A mental health professional-- a psychologist, social worker, or counselor-- provides therapy to help with the stresses of life. Psychiatrists prescribe mental health medications. Some also offer therapy.

Nutritionist or dietitian 🍎

Good nutrition is one of the best ways to stay healthy. That’s because eating the right food helps to maintain a strong immune system and body. A nutritionist or dietitian helps you create a balanced diet plan. They provide guidance on healthy eating habits, supplements, and managing any diet-related side effects of your medications.

Social worker or case manager 🤝

Navigating healthcare and social services can be overwhelming, and that’s where social workers and case managers come in to help. They assist with accessing resources, such as housing, financial aid, and support groups. These awesome individuals ensure you’re receiving all the services you need.

Support groups and peer support 👥

You’re not alone. Connecting with others who are living with HIV is a great way to find advice from others in similar situations. Support groups and peer support networks, either in person or online (hello Positive Peers!), provide a safe space to share experiences, ask questions, and gain encouragement.

Dentist 🦷

Oral health is an important part of your overall health. Regular dental check-ups help prevent infections and other complications. Tell your dentist about your HIV status so they can provide appropriate care and monitor for any HIV-related oral health issues.

Gynecologist or OB-GYN (for those assigned female at birth) 🧑‍⚕️

Those AFAB (assigned female at birth) and living with HIV might include a gynecologist or obstetrician-gynecologist (OB-GYN) in their care team. Regular gynecological exams are essential for good reproductive health. They give guidance on family planning and pregnancy. (Fun fact: some family medicine doctors also offer routine gynecology care, so be sure to ask your PCP if they’re comfortable handling your gynecology needs!)

Specialty doctors, as needed ⚕️

Depending on your health needs, you might need to see other specialists. For example, if you have heart issues, a cardiologist can help. If you have gastrointestinal concerns, a gastroenterologist or colorectal surgeon is the go-to. Your HIV specialist will help coordinate care with these specialists to ensure you’re getting great treatment.

Other clinicians

There are other professionals that work on the care team. Sometimes, you might see a physician assistant (PA) or nurse practitioner (NP) when you go to an appointment. They usually are supervised by a doctor, and many help with primary care. Others handle specific health issues, like STI testing. There are also nurses, who you’ll probably see at every appointment, and they give medicines and work with a doctor.

Support is out there 🤗

Having a well-rounded health care team, centered around a knowledgeable HIV specialist, is key to managing your health. Each member of your team plays a unique role in supporting your well-being, so don’t hesitate to reach out and build a strong support network.

At Positive Peers, we understand the importance of having the right people by your side. Our app is designed to connect you with resources, support groups, and information. Download the Positive Peers app today and join a community that’s here to support you every step of the way. 🌟📲